• Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.
  • Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.
  • Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.
  • Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.
  • Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.

Ethan James Wyne
MCADD Organization

We are a group of local professionals and close friends and family to Becky and Trevor Wyne, whom tragically lost their precious son, Ethan, who was born with a very rare genetic disorder called Medium chain acyl-CoA dehydrogenase deficiency (MCADD).

Our goal is to raise awareness and education. Thus, this group of closely knit friends and family has been formed in Ethan's honour.

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As an organization our two main objectives are to increase awareness and education for health care professionals, expectant parents, and the general public. We also aim to provide support for all people affected by MCADD or new parents with questions regarding MCADD.

Stay Up to Date & Informed

See what we are doing, join the conversation, or start a new one!

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Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationFebruary 23rd, 2017 at 5:00am
About 1 in 15,000 babies are born with MCADD.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3381659/

To be considered a Rare Disease by European standards, frequency of the disease must be fewer than 1 in 2000.

Please help us celebrate Rare Disease Day on February 28, 2017 by learning and sharing as much as we can about MCADD!!
http://www.rarediseaseday.org/arti…/what-is-rare-disease-day
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationFebruary 23rd, 2017 at 5:00am
http://rarediseaseday.us

Rare disease day is February 28th. Let's share as much as we can about MCADD on rare disease day!
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationFebruary 23rd, 2017 at 5:00am
http://www.liverpoolecho.co.uk/news/liverpool-news/baby-died-rare-undiagnosed-condition-12446456

This story is very similar to Ethans. Our goal is to create awareness and educate to prevent another baby from dying from MCADD.
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationFebruary 23rd, 2017 at 5:00am
Sorry for the minor inconvenience with our Discussion Forum on our website! All is fixed now and you can discuss away!! Get the convo started!! Not sure what to say? Participate in one of our topics already started!

Ejwmcadd.org
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD Organization added a new photo.February 23rd, 2017 at 5:00am
Twitter

Please help us celebrate Rare Disease Day on February 28, 2017 by learning and sharing as much as we can about MCADD!! https://t.co/jnwS9V7AfU EJWMCADD photo

A Rare Disease by European standards, frequency of the disease must be fewer than 1/2000. #rarediseaseday2017 #mcadd #ejwmcaddorg

About 1 in 15,000 babies are born with MCADD.
https://t.co/YEa8tIpDZa

Sud Spud this Saturday Oct 29th at Houston's Country Roadhouse #EJWMCADD #bdn