Ethan James Wyne MCADD Organization
We are Trevor and Becky Wyne. Our Son Ethan James Wyne was diagnosed with Medium-chain acyl-CoA dehydrogenase (MCAD) deficiency on September 12, 2013, 8 hours after Ethan passed away.
The entire pregnancy and delivery with Ethan was fantastic. He was a healthy baby all through the pregnancy and when delivered, everyone thought he was a healthy baby boy. He was born September 8, 2013 weighing 8lbs 9oz and 21.75 inches long. Ethan was discharged from the hospital September 10, 2013 and was doing well. He was a happy and content baby. Rarely cried unless he was cold and had to be woken up for his regular feeds. He was a dream baby to have! Half way through the day on September 11th Ethan began struggling with feeding. He wasn’t feeding for longer than 5-10 minutes at a time. We were informed by a health care professional that if he was urinating and having regular bowel movements that Ethan was getting enough to eat. As the day went on Ethan was still struggling to eat but he was urinating regularly and having regular bowel movements. Ethan was very tired throughout the day but as a new born we expected him to sleep a lot. My husband woke Ethan up for his midnight feeding and again we struggled to get him to eat for more than 5 minutes. We got out our breast pump and pumped 3oz of breast milk and tried to feed him that way but we had no success. We had decided that we would prepare a formula bottle to see if that would be better for him but before we could get the formula bottle made Ethan had passed out. Not knowing what was going on we called 911 and my husband did CPR on Ethan until the ambulance got to our home. When Ethan got to the hospital the Doctors and Nurses had no idea what was happening with Ethan. Within 20 minutes of arriving at the hospital Ethan had passed away.
The reason we have created this organization is to save babies like our son Ethan. We would give anything to have him back and would never want anyone to go through what Ethan and our family has endured. We love Ethan more than anything in the world and creating and running this organization is our silver lining. This is Ethan`s legacy!
Awareness/Education - Bring awareness regarding MCAD deficiency and provide education to expectant parents, health care professionals and the general public.
Support - Provide support to all people that are affected by MCAD deficiency.
Research – Raise money for research to better the lives of MCAD deficiency patients