We are a group of local professionals and close friends and family to Becky and Trevor Wyne, whom tragically lost their precious son, Ethan, who was born with a very rare genetic disorder called Medium chain acyl-CoA dehydrogenase deficiency (MCADD).
Our goal is to raise awareness and education. Thus, this group of closely knit friends and family has been formed in Ethan's honour.MORE
As an organization our two main objectives are to increase awareness and education for health care professionals, expectant parents, and the general public. We also aim to provide support for all people affected by MCADD or new parents with questions regarding MCADD.
See what we are doing, join the conversation, or start a new one!
TODAY is Rare Disease Day! How will you #ShowYourRare today in solidarity with rare disease patients all over the world? Get involved: https://t.co/E6jbKDOOUX #RareDiseaseDay pic.twitter.com/tyUCZSmWxR— Rare Disease Day (@rarediseaseday) February 28, 2018
We will be meeting at the Keystone Centre parking lot today at 2 pm to walk for the kick off of our virtual walk to raise awareness for @rarediseaseday feel free to come out and join us— EJW MCADD (@EJWMCADD) February 25, 2018