• Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.
  • Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.
  • Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.

Ethan James Wyne
MCADD Organization

We are a group of local professionals and close friends and family to Becky and Trevor Wyne, whom tragically lost their precious son, Ethan, who was born with a very rare genetic disorder called Medium chain acyl-CoA dehydrogenase deficiency (MCADD).

Our goal is to raise awareness and education. Thus, this group of closely knit friends and family has been formed in Ethan's honour.

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As an organization our two main objectives are to increase awareness and education for health care professionals, expectant parents, and the general public. We also aim to provide support for all people affected by MCADD or new parents with questions regarding MCADD.

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See what we are doing, join the conversation, or start a new one!

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Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationDecember 6th, 2016 at 2:01pm
Sorry for the minor inconvenience with our Discussion Forum on our website! All is fixed now and you can discuss away!! Get the convo started!! Not sure what to say? Participate in one of our topics already started!

Ejwmcadd.org
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD Organization added a new photo.December 6th, 2016 at 2:01pm
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationDecember 6th, 2016 at 2:01pm
Just so everyone is aware, the Sud Spud this year is adults only as per Houston's new policy. Sorry for any inconvenience this causes!
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationDecember 6th, 2016 at 2:01pm
I was recently asked, "Where does the money you raise go?"

This was a great question and one I think we have forgotten to answer regularly enough! So for those of you who are wondering, here is a summary of where your generous donations have gone.

Immediately after organizing our group of VOLUNTEERS, we had information materials designed and printed for distribution around Brandon, MB predominantly in all of the medical clinics. We also bring these, and some other promotional materials, to all events we attend to raise awareness and inform the public about who we are and what MCADD is.

We also have hosted 2 FREE information sessions to date for health care professionals with Dr. Mhanni, a Geneticist from Winnipeg, MB, educating on detecting, diagnosing, and treating MCADD. This is something we fully intend on continuing with and always have a wonderful turn out.

Our largest expense and project so far that we have taken on with your help is the development of a website. We are currently on our 3rd version of the site as the site has grown and matured as our group has. Please check it out, www.ejwmcadd.org; we are so overly impressed with the design and functionality of this site. We feel that this NEW website will be instrumental in reaching the audience we wish to reach and providing a gathering place for those who are curious or have experienced MCADD sometime/somehow in their life.

Finally, we have also held FREE public MCADD Awareness Walks annually in an attempt to attract attention and welcome newcomers to learn more about MCADD. We are currently working on our goal for this event on how to make it larger, reaching more members of our audience far and wide.

We now find ourselves at a point where we have some funds that we are able to put towards some great, BIG projects that we will keep under wraps for now. I will say, we feel these new endeavors will help us reach our goal of educating the public and inspiring everyone to ask questions and educate themselves regarding their own or their children's health.

Thank you everyone for your past and continued support!!! Hope to see you at our next event!!
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationDecember 6th, 2016 at 2:01pm
We still have lots of tickets available for the Sud Spud October 29th at Houston's Country Roadhouse. Feel free to wear a costume! We are also accepting prize donations if anyone is interested in making a donation.
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Sud Spud this Saturday Oct 29th at Houston's Country Roadhouse #EJWMCADD #bdn

Second annual MCADD awareness walk June 25, 2016 from 1:00 to 3:00 at Grandvalley Church #MCADD #ejwmcadd #bdnmb

The annual EJW MCADD fundraising supper is next week, Oct.7th, 5-9pm at @HoustonsBrandon, get your tickets now!! @EJWMCADD #ejwmcadd #mcadd

Annual EJW MCADD supper is Oct. 7, 5-9pm, Brandon @ houtsons, tickets are onsale... 50/50 & raffle prizes! Who needs em!? #mcadd #ejwmcadd