• Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.
  • Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.
  • Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.
  • Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.
  • Support
    Registered Charity
    Awareness
    Our goal is to raise awareness and education in honour of Ethan, who was born with a very rare genetic disorder.

Ethan James Wyne
MCADD Organization

We are a group of local professionals and close friends and family to Becky and Trevor Wyne, whom tragically lost their precious son, Ethan, who was born with a very rare genetic disorder called Medium chain acyl-CoA dehydrogenase deficiency (MCADD).

Our goal is to raise awareness and education. Thus, this group of closely knit friends and family has been formed in Ethan's honour.

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As an organization our two main objectives are to increase awareness and education for health care professionals, expectant parents, and the general public. We also aim to provide support for all people affected by MCADD or new parents with questions regarding MCADD.

Stay Up to Date & Informed

See what we are doing, join the conversation, or start a new one!

Facebook
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD Organization shared a post.March 23rd, 2017 at 8:03pm
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationMarch 23rd, 2017 at 8:03pm
Here is a very informative two page handout on what MCADD is and what a positive diagnosis means put out. Y the Winnipeg Health Authority!

http://www.wrha.mb.ca/prog/genetics/files/MCADD.pdf
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationMarch 23rd, 2017 at 8:03pm
What is MCADD? Take a look at this video and learn a little more about this rare genetic disorder.

https://www.youtube.com/watch?v=pthtqxXmCnQ
Ethan James Wyne MCADD Organization
MCADD
Biology Project
youtube.com
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationMarch 23rd, 2017 at 8:03pm
Tomorrow is rare disease day. Ethan was born with MCADD which is why we have created this organization. Lets tell as many people we can about MCADD. #ethanjameswynemcaddorganization
Ethan James Wyne MCADD Organization
Ethan James Wyne MCADD OrganizationMarch 23rd, 2017 at 8:03pm
About 1 in 15,000 babies are born with MCADD.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3381659/

To be considered a Rare Disease by European standards, frequency of the disease must be fewer than 1 in 2000.

Please help us celebrate Rare Disease Day on February 28, 2017 by learning and sharing as much as we can about MCADD!!
http://www.rarediseaseday.org/arti…/what-is-rare-disease-day
Twitter

Here is an informative 2 pager on what #MCADD is and what a positive diagnosis means by the #WRHA
https://t.co/Ya9eA1ktTG

Read this!! #MB added MCADD to their screening in 2011 after the addition of new tech to test for MCADD! https://t.co/Tknsi1VAMQ https://t.co/ilpuTD1kYJ

RT @NBS_Ontario: It's amazing how much our lab has grown since this virtual tour was made! https://t.co/LYi4QrHVPD via @YouTube #tbt #newbo

Curious about who we are and we do for #MCADD? Invite us to your event, class, or group to talk about the #EJWMCADDORG. #AWARENESS